From: Susan Smith
Sent: Monday, August 26, 2019 1:54 PM
To:
Subject: Hoping for 9/3
Sent: Monday, August 26, 2019 1:54 PM
To:
Subject: Hoping for 9/3
Dear,
It’s been really down
and then up since my last email a week ago.
Last Tuesday night, I
went to the Urgent Care after urinating blood and got my first bladder
infection. It’s likely not related to RHS nor the meds I am taking, so
was probably just a random thing that happened. I got antibiotics, spent
a few more days in bed and it’s better now.
On Friday, I went to
the Neurologist and he confirmed I have Ramsey Hunt Syndrome. He changed
my medicine from Gabapentin, which is mostly used for nerve pain, to Gralise,
which is a name-brand med specifically for Shingles. Whereas Gabapentin
is a clunky medicine and can have 12 pills a day, Gralise is only 2 pills at dinner
and so it’s much easier to take. I am thus very hopeful that the Gralise
will help with the pain until this Shingles virus goes away. It’s been
difficult for me to accept that I have a “very” rare illness and the
Neurologist said I’m in the 8% of RHS who do not get the rash.
The Neurologist also
said I can return to work as soon as the pain is gone and I am ready, so I am
hoping for 9/3 with all my might.
The Gralise is supposed
to work quickly and I see two positive signs already from it. I had a
good weekend because I went for a 2 hour walk on Sat and we went to see a movie
yesterday. It felt so good to get out and feel okay. Then, I woke
up today w/o pain for the first time since this all started and that was really
nice.
I’m at 11 weeks and my
face looks pretty normal. My left eye still doesn’t blink and my left
check is still swollen.
I know there’s been a
lot of change at work, like usual, with the new phone system, new SF file
statuses, a new hire class and a new training site. Wow, good job!
I’m sorry I could not
help the team with Fall A, B or C, but I’m hoping to contribute to Fall D!
So, hopefully I’ll see
you guys in one week from tomorrow. I hope I have a good week and you too. I hope this Gralise medicine works for me. I hope the
pain goes away. I hope I get better soon. I hope the team makes
Fall C. I hope to return to work on 9/3,
Susan
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