Friday, December 06, 2019

Email to my work colleagues called "On the up and up, hopefully, finally" about my Ramsay Hunt Syndrome journey


I have many good things to share that give hope that I am finally on the up and up.

Of the nine pills that the doctors have prescribed for me, I am down to only taking three a day.  That’s good.

I can now do every posture in yoga classes.  That’s good.

I got a MRI of my brain with contrast on Monday and it came back normal.  I had more blood work on Tuesday and it came back normal.  That’s good.

We went to Mt Princeton Hot Springs last week and I soaked in the mineral waters for 16 hours over four days with the hopes of being healed.  That’s good. 

I started taking magnesium vitamins to promote my muscular recovery in my face.  That’s good.

I cooked my three traditional dishes for Thanksgiving and we went to my parent’s to eat with my whole family.  That’s good.

I continue to go to the chiro and acupuncture each week.  That’s good.

I started seeing a health professional weekly through zHealth who gives me drills to do every day that’s like physical therapy for my nervous system.  That’s good.

I experimented with getting three lidocaine injections in my upper left back two weeks ago to reduce swelling and pain with the hopes it would calm down my left neck, ear and head.  I think it helped and so I went again yesterday and got five shots this time, which I think have helped too.  That’s good.

The holidays are upon us and the time of giving, excitement and Christmas music lifts my spirits.  That’s good.

I still tire very easily and so I still give myself lots of rest time during the day and plenty of sleep time during the night.  That’s good.

I got a TENS unit (electrical nerve stimulation) and I’ve been using it on my upper left back & neck to treat pain and encourage nerve regeneration.  That’s good.

I’ve played a lot of Backgammon, chess and other card games lately with Philip and he now can honestly beat me.  That’s good.

Jimmy leaves on Thur for Costa Rica for a week alone to see his family and to take a break.  That’s good.

I feel less pain now, the pain is less when I feel it and it lasts for less time.  That’s good, really good, great actually!!!

I admit I still do not understand how I have Ramsay Hunt Syndrome.  I’ve had several medical tests and every one had normal results.  Yet, the partial facial paralysis and debilitating pain for several months have no other medical conclusion.  What else could I have?  Why did this happen to me?  I’ve accepted that many of my questions will go unanswered.  I just don’t know what happened to my body back in mid-June that caused me so many health issues. 

My goal this month is to strengthen myself physically and mentally.  That’s good.

I’m thinking of a potential return date of 1.7.20 for me to come back to you all.  (My boys don’t have school on 1.6.20 and I want to start working when I can fully focus on me.)  After being so sick and being out for so long, I’m wondering if I could return to work with a 30 hour a week schedule for a month or so.  Is this possible?  It would be good for me.

I am grateful for my employment at CSU Global.  That’s good.

I give thanks for you four and y’all allowing me to email you with my updates.

So, am I finally on the up and up?  I sure hope so.  It’s been six months and I am so ready to be strong, healthy and happy again.  

I wish you all safe and healthy holidays this December 2019,

Susan

#RamsayHuntSyndrome